Hello everyone. I m new to the group. I had Kawasaki disease when I was 10

Hello everyone! I'm new to the group. I had Kawasaki disease when I was 10. I'm now 24 years old. I can remember having horrible leg pain and had to be in a wheelchair during my time with the disease and even 5 years after. Every now and then my legs feel the exact same way. Has anyone else had leg pain?

12 comments
  • My son, it was his very first symptom.

  • My son is almost 3 years post KD and he has been complaining his leg hurts for about a week.

  • My daughter is 3 years post and she still complains. Reflexology helps

  • I get super sore legs sometimes

  • My daughter had atypical kawasaki when she was 6. From the moment her fevers went down she had some terrible leg pains. She is now 11 and still gets it once in awhile. Had had a dilated coronary artery for a few months too with the aspirin therapy. She never received the ivig

  • My son complains a lot of leg pains and did during the onset of KD 1 year ago!

  • My grandson who owns this account is also complaining of knee pain specially when it gets cold!

  • I understood that Naprosyn works well for the Arthritis / joint pain after KD. Has anyone tried it on kids younger than 5?

  • Yes we use it when needed when my son (3) has any intense leg pains but it's not great to take all the time ...like any medication

  • It does work well though! So does ibuprofen

  • my son diagnosed age 12 - now 4months on complains of leg pain! worse whilst in hospital!

    he however suffered leg pains around 4-6months before diagnosis which docs put down to lack of vitamin D. So can't be 100% sure his is KD related xx

  • I had kd when I was 7 and I am now 24. My legs hurt very often. Sometimes even my lower back. Here recently I have been really fatigued but am not sure if it's a "long term affect" or not. I need to go get a checkup!